When it comes to nurturing and raising a child with special needs, finding the help you need can be half the battle. This list is our go-to resource and has been invaluable in enriching Kyle’s world.
Dr Kim Blake
CHARGE Syndrome, Pediatrics - Dr Kim Blake - Halifax, NS
Dr. Kim Blake is a professor of Pediatrics at Dalhousie University in Nova Scotia, Canada. She has been researching in CHARGE syndrome over the last 35 years and has published extensively. She has answered research questions concerning post-operative airway events, sleep apnea, bone health, cranial nerve abnormalities and gastrointestinal issues.
The BC Family Hearing Resource Society is the largest not-for-profit organization in British Columbia serving children who are deaf and hard-of-hearing, aged birth to school-entry.
For 3-5 years, we have been providing intervention, support, education, sign language instruction and peer-to-peer mentoring to families throughout the province.
http://www.bcfamilyhearing.com/
Julia is a UK trained Occupational Therapy, who moved to Canada in 1987 and has worked with children throughout her career. She trained as a yoga teacher in 2015 and is continuing her studies to bring self regulation and calmness as a basis for more traditional Occupational Therapy.
PlayWorks Physio is the newest paediatric physiotherapy clinic in the Tri-Cities. We offer engaging, individualized treatment for kids aged 0-18 years. Our main priority is to help kids and teens reach their physical goals while having FUN! Kids’ bodies are different than adults and their pain and injuries also differ.
www.playworksphysio.com
"Kyle has worked with his Physiotherapist on a number of functional skills such as paddle boarding, skiing, ice-skating, scootering, and biking. These skills all help to build his independent strength and function, but they also help him build skills that he can use in social settings to connect with friends, and other members in the community. The more confident Kyle becomes moving his body in various sports, the more he will be willing to participate in physical activity in the community, on family vacations, and as a method of staying physically, and mentally fit!"-Karly Dagys, Founder Groms Physio + Co, Squamish, BC
Vancouver Adaptive Snow Sports (VASS) runs skiing and snowboarding programs for persons with a disability at Grouse, Seymour and Cypress Mountains. VASS makes the mountain experience accessible to all. VASS is a registered non-profit society (89254 2168 RR0001), operated by a dedicated group of volunteers, which includes an active Board of Directors, program coordinators, instructors and administrators.
Canucks Autism Network (CAN) was founded in 2008 by Vancouver Canucks Co-owners, Paolo and Clara Aquilini, whose son has autism. CAN is dedicated to providing programs to individuals with autism and their families, while promoting acceptance and inclusion through community engagement and training initiatives across BC and beyond.
We provide families living with autism unique event experiences in a dynamic, enriching and inclusive environment. SUPA Society was established in 2012 by Dennis Nerpio and Rip Curl Canada, originally as an event called Surf’s Up. The premise was to offer a unique experience for children and families who face the ongoing challenges of living with Autism.
With a vision for inclusive communities where every person thrives at all stages of life, we To lead in the design and delivery of community-based services for persons with diverse abilities.
www.bc-cfa.org
Physiotherapy, Occupational and Speech Language Therapy for Kyle's oral feeding support while still with G-J feeding tubes.
